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in regards to cancer what does not curable but treatable mean

Non curable only treatable

catman

My Dad's stage IIIb lung cancer, co-ordinate to the Oncologist, is non curable merely treatable. The goal is to keep information technology from spreading. Does this mean he will be on chemo the rest of his life? Anyone out there in the same gunkhole?

Comments

  • marybear

    lung cancer
    howdy catman my name is mary and husband was daignosed with stage 4lungcancer nscl squamos in june xiii.08 could not operate the cancer spread to chest area and lymph nodes he did i chemo on august18 6 hour taxol and cisplatin was fine for a week then couldnt move a musculus got 103 fever put in infirmary for 3 weeks center flooring he went into arrthymia of heart and couldnt walk very well to this solar day he has no more chemo our desicion started takeing tarceva only hope left for concluding lung cancer only on it 3 weeks no rash yet the rash means it is working did cat browse 3 weeks ago the primary lung tumor got larger 6cm by5cm new nodules in right lung every bit well now in left lung 2 there and 1 on the spleen will see if they tarceva will help compress the lung tumors that is what its for will do another catscan in 2 months hope your dad is well what treatment did oncologist advise to exercise at this fourth dimension

  • catman

    Treatments
    Mary - Lamentable to hear about your husbands situation. I hope this Tarceva drug does the play a joke on. The more I hear virtually taxol the more information technology sounds similar it is a very harsh drug. My Dad is on Charboplatin and Gemzar. He has treatments every three weeks for six months. I estimate my question is what happens later on half-dozen months since it is not curable? I dont like dealing with absolutes when it comes to cancer. I believe anything is possible. Most of what Oncologist tell you is based on statistics. If someone merely has a 10% chance to alive, they still accept a take a chance. Thank you lot for the data and I hope your husband beats this monster.

  • marybear

    Treatments
    Mary - Sorry to hear about your husbands situation. I hope this Tarceva drug does the play a joke on. The more than I hear most taxol the more than it sounds like it is a very harsh drug. My Dad is on Charboplatin and Gemzar. He has treatments every three weeks for six months. I guess my question is what happens afterwards six months since information technology is non curable? I dont similar dealing with absolutes when it comes to cancer. I believe annihilation is possible. Most of what Oncologist tell you is based on statistics. If someone only has a 10% hazard to live, they still have a run a risk. Cheers for the information and I hope your husband beats this monster.

    lung cancer
    thank yous catman got your bulletin only hope at present tarceva the oncologist said he hopes information technology volition aid volition know in two months hubby getting weaker i dont sparse it will help to be honest on ly the drug companies are getting richer from this diesese will keep in touch on cheers good luck to your dad hope the chemo helps him my hubby would tolerate the chemo merely has bad eye goes into arrythmia then fast if he didnt have eye trouble could fight the cancer hope y'all have religion in god he will aid your dad threw this proceed in touch mary

  • rodrigud

    hey Catman
    My husband has stage iv nsclc and was given a year with treatment, a year ago. He is doing well, working full time. Has Many bone mets, liver tumor etc. He took carboplatin/taxol with good results for half-dozen months. Decided to practice 2 more treatments but cancer didn't respond. Had chemo vacation planned for 2 months simply hurting increased and so he got 15 radiation treatments in 5 places (biggest nigh painful tumors). Tried waiting for 8 weeks for a new baseline PET but cancer is very agile so yesterday he started Alimta. We are scheduled for half-dozen treatments. He has a positive mental attitude and refuses to requite cancer the upper hand. Goes to piece of work everyday and later treatments. His oncologist has given him meds for every contingency, eg: 4 nausea meds, one is jump to work...laxatives, stool softeners, you lot name it... When ambition fails he eats many pocket-size snacks a mean solar day. So a year after he is living his way. He has much pain, he gets nauseous, he has night sweats and sits on pillows sometimes...he has over 26 os mets. But he is doing it his mode and he is doing good...work hard, fight hard and have the best days you lot can. Prayers are with yous...Rodrigud

  • marybear

    hey Catman
    My husband has stage 4 nsclc and was given a year with handling, a year agone. He is doing well, working full time. Has Many bone mets, liver tumor etc. He took carboplatin/taxol with good results for 6 months. Decided to exercise 2 more treatments but cancer didn't answer. Had chemo vacation planned for ii months but hurting increased and then he got xv radiation treatments in 5 places (biggest most painful tumors). Tried waiting for 8 weeks for a new baseline PET just cancer is very active and then yesterday he started Alimta. We are scheduled for 6 treatments. He has a positive mental attitude and refuses to give cancer the upper hand. Goes to piece of work everyday and later on treatments. His oncologist has given him meds for every contingency, eg: 4 nausea meds, one is jump to piece of work...laxatives, stool softeners, yous name it... When appetite fails he eats many modest snacks a twenty-four hour period. And then a year later he is living his way. He has much pain, he gets nauseous, he has dark sweats and sits on pillows sometimes...he has over 26 bone mets. But he is doing it his mode and he is doing adept...work hard, fight hard and take the best days you can. Prayers are with you...Rodrigud

    lung cancer
    hello rodrigud glad to know your husband doing well mine isnt simply washed one chemo ended upwardly in infirmary back in sept and so heart went into arrytmia just 1 treatment of taxol 3hours and cisplatin 1 60 minutes at present trying tarceva for the lung cancer three weeks ago did second true cat scan tumor in lung grew 6cm by 5cm modest ones in correct lung and now 2 modest in leftlung also one now one the spleen if the tarceva doesnt help we volition exist in hospice by christmas time thanks for replying he has nscle stage four diagnosed in june o8 only sympton weight loss equally of march now downwardly to 112 lbs from150 as of feb keep in touch on rodrigud glad married man doing ok

  • imakrzymama

    not curable
    To Catman;
    My husband has the same. they called information technology small cell anaplastic carcinoma. I just spoke to the doctor yesterday while my husband was getting his chemo and he told me the chemo volition shrink it but it will never go away. Information technology may seem like it only volition go on coming back. That was very disappointing to me only I am non telling my husband this every bit he is very upbeat and confident that he is doing well. That is all I can inquire for. As long equally he is happy, I'yard happy! Just make your dad comfortable and happy. He volition feel much better.

  • catman

    What's adjacent?
    Thank yous for your response. So, once it has shrunk, what next? Has the oncol said annihilation about the long term? Will your married man be on and off chemo the rest of his life? Accept you thought almost getting a second stance? Sorry virtually all the questions. My Dad lives a couple hours abroad so I dont get a chance to go to his appointments with him to find these things out.
    Thank you for the information and good luck to you and your hubby

  • marybear

    non treatable
    Hi catman thanks for the post hope all is well my husband the last ii days is getting weaker cant stand up upward too long i have to get to bathroom with him he said tonight his whole trunk is getting weaker dont know if the tarceva is working no rash has appt side by side fri with oncologist merely i accept to reorder the tarceva buy and so will try to change appt for a few days earlier to come across if it is helping him hope your dad is feeling better when was his last cat scaan that would testify if the tumors are shrinking we exercise 1 every iii months hang in there catman

  • APS

    NSCLC with malignat pleural effusion
    I never idea I would exist writing about this...just hither I am. My mom was diagnosed 2 weeks ago with Non minor cell lung cancer. She started having breathing problems. We went to the infirmary and found out she had pleural effusion. The water tested positive for malignant nsclc. This was such a shock for someone historic period 62, never smoked and preaches to others about health, yoga and daily juicing.
    Well, since at that place is no tumor they have started her on tarceva daily no chemo. She started taking it yesterday. My mom is a very very positive woman and has a lot of faith in god!!
    I would Honey to hear any success stories and people living with this horrible disease.

    My prayers are out to everyone out there who is suffering with any form of cancer...

    Thank you,

  • Diane03

    lung cancer
    hi rodrigud glad to know your husband doing well mine isnt just done one chemo ended up in hospital dorsum in sept so heart went into arrytmia but one treatment of taxol 3hours and cisplatin 1 hour at present trying tarceva for the lung cancer 3 weeks ago did 2nd cat scan tumor in lung grew 6cm by 5cm small ones in correct lung and now 2 small in leftlung likewise one at present i the spleen if the tarceva doesnt help we will be in hospice by christmas time thanks for replying he has nscle stage 4 diagnosed in june o8 simply sympton weight loss as of march now downwardly to 112 lbs from150 as of feb proceed in touch rodrigud glad hubby doing ok

    arrythmia
    I had the same reaction during my 2nd treatment using cisplatin and taxol. I am now on gemzar and navolbine. I find out monday whether or non the tumor (due south) are responding.
    My left lung was 9cm and the 1 on my adrenol gland was 4cm. I was diagnosed in May 08 phase IV.
    I haven't actually asked the life line question of my doctor however. I wish you and your family the best.

  • marybear

    arrthmia
    hullo Diane thanks for the reply yes he did one chemo cannot do information technology anymore heart is only functioning at xxx% capacity we are trying tarceva one month on it dont call back it is helping hime will meet primary tomorrow to talk over options with hospice care at home will take to make up our minds if we want to pay for some other calendar month of tarceva out of pocket now in the donut pigsty of insurance it price $iv,500.00 for 30 twenty-four hours supply hope yous are doing well go along in bear on good luck with your results this calendar week

  • Diane03

    arrthmia
    hi Diane thanks for the answer yes he did one chemo cannot practise information technology anymore centre is but functioning at 30% capacity we are trying tarceva ane month on it dont call up it is helping hime will see primary tomorrow to discuss options with hospice intendance at habitation will have to make upwards our minds if we want to pay for another calendar month of tarceva out of pocket now in the donut hole of insurance it cost $4,500.00 for thirty mean solar day supply hope you lot are doing well go on in touch adept luck with your results this week

    Insurance....
    You gotta honey information technology- Wow! $four,500- did you try and contact the manufacturer of Tarceva? I know there are some studys utilizing that drug. I'k so distressing yous and your family have to go through making such drastic decisions.
    My scans were skilful news and bad- The lung tumor shrunk to 1/2 the original size. In that location are 3 more tumors at present. i in the lung and 2 on the adrenol gland. New handling starts on Wednesday.
    My eye goes out to you and your family unit. I promise you are all doing as all-time as possible.
    Diane

  • blondie1

    Stage Iv Non-Small-scale Cell Adenode Carcinoma
    I am a 56 year old female diagnosed with Stage IV NSCAC in June 2006. I had a tumor in each lung and involvement of the lymph nodes on both sides of the beastbone. I besides had cells floating behind my tonsils. I started on Carboplatin, Taxol, and Avastin in July and continued until Nov. 2006. The treatment was grueling with horrible flu-like symptoms and severe nausea. Around the tertiary handling I adult neuropathy in both feet. By the last handling I idea I truly was going to die from the treatment. But I didn't and went into remission for a year. In January of 2008 one tumor in i lung had returned. I started a regimine of Taxotere that lasted until April of 2008. The side effects were like but not then severe. A new side event was the loss of my toe nails and my fingernails got small ridges in them. My pilus has since started to grow back with ane pocket-size expanse on the superlative of my head still very thin. My center lashes are slower to grow dorsum and are very skimpy. The tumor was withal there at the end of treatment. Very small, but nevertheless there. It too is stable (not growing). I am on observation until November when I will go some other C-Scan to meet how things are going. There are a couple of very promising treatments in the trial stage - so there is always hope. My understanding is that they will try new treatments until it becomes a question of quality of life vs. treatment. Most treatments actually take a cost on the trunk, with some of the side effects beingness permanent - similar my neuropathy. I imagine at some signal the handling will not seem worth information technology. But for now I am practiced and have returned pretty much to normal; treatment of the neuropathy has brought some relief - but information technology is still at that place.

  • marybear

    not treatable
    hi Blondie thank you lot for your post we stopped tarceva as of today will not pay for it anymore concerned about your nerapathy husband withal has it after 2 months how can information technology go away what tin you practise for it he has to walk with a walker his anxiety feel like mush and his legs get and then so heavy and tired promise everything is good with you lot and you lot get stronger everday mary

  • dakota770

    Hi Catman
    Catman,

    Sounds similar your father and I have the same thing. Incurable means it volition always be there with a chance of it coming back. The hope is to get it in remission and keep information technology there for as long as possible. I've only had two chemo treatments and so far and finished my radiation to my head. Now I've started radiation on my lung.

    I was just diagnosed less than 2 months ago. Acutally on Sept 1 2008. I went to the emergency room for a very bad headache and next thing I knew I was in an ambulance on my style to One thousand Rapids. They had establish a tumor in my encephalon. When I got to GR, they did a full cat browse and plant the original tumor in my lung. The one in my head was operable and they operated on Sept four. The 1 in my lung is inoperable considering it's wrapped itself effectually my pulminary arterty. I will exist on chemo until it is in remission. No idea how long that will be even so. Subsequently my 3rd handling I will take another PET browse to see if the chemo is doing what it'south supposed to. If it is, nosotros continue going. If not, we switch to another medicine and come across if that works better.

    Every bit for being on chemo for residual of his life, I don't think they exercise that. only he will have to be checked every few months after he's in remission. It will come back and the treatment starts over again. How long earlier it comes back is any body's gauge. Some people can go years in remission. I just met a human in chemo this calendar week who is finally in remission afterwards being on chemo for iii years. He refused to give upwards. The whole goal is to shrink it into remission. That's the all-time we tin can hope for. I say, get me in remission and I will see how long I can stay there.

    Good luck with your dad. As things continue and I ask more than questions, things seem to go understandable.

  • Diane03

    Hi Catman
    Catman,

    Sounds like your father and I take the same thing. Incurable means it will always be at that place with a risk of it coming back. The hope is to get it in remission and keep it at that place for equally long every bit possible. I've but had 2 chemo treatments so far and finished my radiation to my head. Now I've started radiation on my lung.

    I was just diagnosed less than 2 months ago. Acutally on Sept 1 2008. I went to the emergency room for a very bad headache and side by side thing I knew I was in an ambulance on my way to Grand Rapids. They had establish a tumor in my brain. When I got to GR, they did a total true cat browse and establish the original tumor in my lung. The one in my caput was operable and they operated on Sept 4. The one in my lung is inoperable because it'south wrapped itself around my pulminary arterty. I will exist on chemo until information technology is in remission. No idea how long that will be withal. Later on my third treatment I volition have some other PET scan to meet if the chemo is doing what it's supposed to. If it is, we keep going. If not, we switch to another medicine and encounter if that works meliorate.

    As for being on chemo for rest of his life, I don't think they do that. but he volition have to be checked every few months after he'south in remission. Information technology will come back and the treatment starts over once more. How long before it comes back is any body's judge. Some people tin get years in remission. I just met a man in chemo this calendar week who is finally in remission later on beingness on chemo for 3 years. He refused to give upward. The whole goal is to compress information technology into remission. That's the best we can hope for. I say, get me in remission and I will run across how long I can stay there.

    Good luck with your dad. As things go on and I ask more than questions, things seem to become understandable.

    Lung
    Good luck with your chemo- I have the same- lung wrapped effectually my pulmonary artery. I too have it on my adrenol glands. I am being told they promise to brand my cancer manageable- a chronic disease-
    You're right you lot take to ask questions and be able to comprehend exactly what is happening.
    I used to live in Livonia Michigan. Tlak about a cold winter state brrrrrrrrrrrrrrrrrrr.

    Good Luck

  • dakota770

    Lung
    Expert luck with your chemo- I have the same- lung wrapped around my pulmonary artery. I also have information technology on my adrenol glands. I am being told they hope to make my cancer manageable- a chronic disease-
    Y'all're right y'all take to ask questions and be able to comprehend exactly what is happening.
    I used to live in Livonia Michigan. Tlak well-nigh a cold winter state brrrrrrrrrrrrrrrrrrr.

    Good Luck

    How-do-you-do Diane03

    I used to have a girlfriend that lived in Livonia. Nosotros are on the other side of the country. Nosotros actualy become more than common cold and snow than you did. With Lake MI right there, we get more lake event than you lot did. Merely the favorite saying around here is, "If you don't similar the weather, expect five min and it volition change".

    As for asking questions, I do it all the time. In fact it's gotten to be kind of a joke effectually the center. They are learning to talk "English" to me. I insist on information technology. I tease the Dr'southward about the departure between Dr talk and English. My Dr's are getting great at cartoon diagrams also. At present I go all kinds of papers about the meds they accept me on for chemo, exactly where they are giving me radiation, etc. They now effort to be prepared for me and it's a game to see if I can come upwards with a question they didn't "fix" for.

    How are you doing? Are you in remission? Or are you withal in treatment? Let me know how yous are doing.

    Wendee

  • Diane03

    Hello Diane03

    I used to accept a girlfriend that lived in Livonia. We are on the other side of the state. We actualy get more cold and snow than you did. With Lake MI correct there, we get more lake effect than you did. Only the favorite saying around here is, "If y'all don't similar the weather, await 5 min and it volition change".

    As for request questions, I do it all the time. In fact it's gotten to be kind of a joke around the middle. They are learning to talk "English" to me. I insist on it. I tease the Dr's about the difference between Dr talk and English language. My Dr'south are getting smashing at drawing diagrams too. At present I get all kinds of papers about the meds they accept me on for chemo, exactly where they are giving me radiation, etc. They now try to be prepared for me and information technology's a game to meet if I tin can come up with a question they didn't "prepare" for.

    How are you doing? Are you in remission? Or are y'all withal in treatment? Let me know how you are doing.

    Wendee

    Hullo Wendee
    I'm doing okay. I have good and bad days. Right at present, for the first time in four months, I am feeling pretty expert.
    No i has e'er mentioned "remission." I've been told the goal is to make it a manageable, chronic disease. Unfortunately, my torso is not agreeing with the types of chemo the doc has tried. I rejected the platin family unit, I am also non fond of gemzar, so today I tried Alimtar (I think)
    Between 4 weeks of radiations and all of the drugs, the lung tumor has decreased to 1/2 it's original size. They promise to blow abroad the new tumors with the alimtar (however it's spelled). I simply hope no new ones pop up during this authorities of treatment and the lung continues to compress.
    I'll be thinking of you lot!
    Be safe-
    Diane

  • Greggriggs

    Phase IV Not-Small Cell Adenode Carcinoma
    I am a 56 yr old female diagnosed with Stage Four NSCAC in June 2006. I had a tumor in each lung and involvement of the lymph nodes on both sides of the beastbone. I as well had cells floating behind my tonsils. I started on Carboplatin, Taxol, and Avastin in July and continued until Nov. 2006. The treatment was grueling with horrible influenza-similar symptoms and severe nausea. Effectually the 3rd handling I developed neuropathy in both feet. By the last handling I thought I truly was going to die from the treatment. Just I didn't and went into remission for a year. In January of 2008 one tumor in i lung had returned. I started a regimine of Taxotere that lasted until April of 2008. The side effects were similar but not then severe. A new side outcome was the loss of my toe nails and my fingernails got pocket-size ridges in them. My hair has since started to grow back with one small expanse on the top of my caput still very sparse. My middle lashes are slower to abound back and are very skimpy. The tumor was nonetheless there at the end of treatment. Very small, but still there. It too is stable (not growing). I am on observation until November when I will get another C-Scan to see how things are going. In that location are a couple of very promising treatments in the trial stage - so in that location is always hope. My understanding is that they will try new treatments until it becomes a question of quality of life vs. treatment. About treatments actually take a price on the body, with some of the side effects being permanent - like my neuropathy. I imagine at some point the handling will non seem worth it. But for now I am good and take returned pretty much to normal; treatment of the neuropathy has brought some relief - but it is still there.

    Grueling
    Hi All.
    I did the carbo an taxol .Some times I wonder if I did the correct thing .They removed my left lung an some lymphs.
    Y'all are correct blondie Information technology sure puts the hurts on your body I dont remember I had a contraction on me that did non hurt... It has been well-nigh 3 years I even so have pain in my feet easily an skin .
    My blood is a mess nothing is normal red cells are low white cells are loftier sed charge per unit is high an and then on.
    One affair your pilus an eyebrows will grow dorsum . I looked similar a new born except for the pilus on my legs never savage out whats with that???
    I tried all the Meds for the neuropathy they have me on prednasone an some chemo drug called meathotrexate . it does non seem to work eathier . I think the taxol an carbo does it'due south damage an I don't know how long it takes to become over information technology if you lot always do. I am 67 years old an had a pretty good life and then I tin't complain to much.
    Thank God for Insurance God Bless you Mary promise you lot tin get some assistance some where I experience then sorry for your Married man I tin can not imagine what he is going through.

    Good luck to all of you I always wondered why they said Cancer was a fight Now I know then all of us volition have to fight dorsum as difficult every bit nosotros can.
    Greg

  • marybear

    not treatable
    Hi Gregg merely got your post hubby ok still deceit walk good damm neurpathy he is taking tarceva the once a day chemo pill got bad diahrea yesterday had to stop it now once every other day he lost his eyelashes recently been to optomologist two weeks agone going back on friday they are still coming out eyes are irrated dont know if this is from tarcea will find out presently hope you are well hang in at that place talk to yu shortly mary

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Source: https://csn.cancer.org/discussion/162747/not-curable-but-treatable

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